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What if Multiple Sclerosis isn't a disease, but a disorder caused by a failure in an overlooked human hibernation syndrome related to immune + white matter deposition in the brain.Is there an #ActuallyMultipleSclerotic community that would attack me for trying to "solve" it?
I'm not diagnosed w/ Multiple Sclerosis yet.I think self diagnosis is valid.I'm going to induce it, and risk my life doing so.So I can show that I have it, and prove I figured out the condition enough to recover. And hopefully show that it's hibernation.Or I'm going to die.
Police my language so I can get more s******l.It fuels me.https://t.co/f9mnjPKc12
There are too many hurt people in the autistic community. They lash out and defend themselves with words like I end up lashing out instinctual while having a meltdown. Protecting ourselves from a lifetime of insults, trying to protect each other. Angry at being misunderstood.
I understand. It hurts. And our desire to protect ourselves and each other is not unjustified.But say one wrong word and the entire beehive starts boiling? This can't be good for a community that struggles with language and meaning.
Like sticking your hand in fire-ant nests. The hive boils outward. Lashes out at anything that feels foreign. Biting on to anything that smells like a threat. Sometimes ripping each other apart just in case.Emotions rippling thru the hive like an alarm pheromone. Contagion.
The disorder that shall not be named.The disease that shall not be meme'd.The syndrome that shall not be tamed.The illness that is perpetual blame game.https://t.co/Iwg6ls7KcG
No thanks @elonmusk, I don't want a computer chip from a large corporation to be implanted in my brain. I think it's a good idea tho, and your heart is in the right place.I want to chip myself with open technology and solve my own autism. Not become a borg. https://t.co/tedu3WggzW
Thinking about brain wearables.https://t.co/aRLjSQKl0l
About how privacy of my connected data is such a pain in the butt.https://t.co/Jtmwz7zRcC
About the complex landscape of laws and regulations that are going to start coming out to police the wearable space.https://t.co/xGPQXfRqvM
Thinking deeply about schelling points in teh space of wearable tech, data privacy laws, and government mandated back doors to access logs of brain data.https://t.co/BjcpfQpUec
Schelling points in a collective goods game are always a trade off between cooperating with the group and defecting on your own. Sometimes cooperation is enforced thru the social systems and behavioral norms emergent out of the interactions between many.https://t.co/tzFQSWycoZ
About how I don't want any of the cyborg enhancements I build or use to be part of the system of surveillance and control that seems to permeate our current technological fabric.https://t.co/NQJ63QVO3V
"Unfortunately, we’ve squandered a lot of our developer smarts and talent on creating commercially self-fulfilling junk food for the mind and an intricate digital economy stickily entwined with proprietary software, profits, and data appropriation."https://t.co/hPWYAS4Kg9
I want to be uploaded, but not like that.https://t.co/lBSSDysHkF
I'm living a cyberpunk novel. Buying products on a computer, having a system of networked couriers transport said items to my house. I open them up and proceed to hack and disable corporate surveillance subsystems, working on building my own when I can't. https://t.co/DvjpCAMPqq
"... all have in common is how they frame our problems with technology as a matter between the individual and a specific device or app rather than the social, moral, and infrastructural relations that ultimately bind them together."https://t.co/XsDgv64fEF
I couldn't get out of bed a few days ago because a month long bought of stress made it so my legs wouldn't work.If we can figure out how to put brain implants in without triggering inflammation and white matter decay, I'd get one.https://t.co/i5IpwqkA1z
I couldn't use my arms. My hands wouldn't even close around things no matter how I tried. It took every bit of my will power to just sit up in bed so my GF cold give me some food.I need to figure out how to measure this. to track it. To solve it.I don't care what you call it.
Whats worse is realizing they wrote all the debugging code as well.https://t.co/YDHv0k5l3U
Whee. Weather change + diet logistics made me think it was a good time to lean into the M.S. so that I could work on getting a diagnosis. I forgot how debilitating some of the emotional and mood/impulsivity bits were.But hey, I wanted to explore more emotion research. 🥲
A lot of this recent flair up was by mistake. I didn't realize I was so close to getting symptoms again because I'd been relatively symptom free since February (best I can tell at least). Figured I'd take advantage of the mistake. But I realize now that I wasn't ready.
Going to try to go back to normal if I can. Chock it up to bad timing and lessons learned. But hey, now I know what I should prepare for, and have a better idea of non-sickness related triggers to explore when I can experiment with it more formally.
The scare with suddenly not being able to walk sucked a bit, but I was fine. But these mood swings are anxiety feelings almost more debilitating. And while cayenne helps a bit with talking, more meltdown/sensory overload states are still hugely imapctful on doing things.
I am being informed that arbitrary medical standards around disease classification are being policed to reflect continuing churn in the way the American psychiatrics Association divvies up disease.I identify as ICD-10-CM Code F84.5Despite it showing F84.0 on my paperwork.
I do not have a medical diagnosis for multiple sclerosis or crohn's disease.I figure the whole family history, candidate genes, occasionally shitting myself, losing the ability to walk is valid enough that not having healthcare or spoons to get a formal diagnosis is alright.
I regret to inform Asperger's isn't real. You actually mean to say Asperger's monster. Or rather Eugen Bleuler's "childhood schizophrenia", or Leo Kanner's "Autistic disturbances of affective contact" but viewed thru lens of medical billing and eugenics https://t.co/nZwyLsIA4w
TFW: your entire identity defined by 20th century psychological categories used to decide if you should be euthanized."a Nazi in all but name, working in the upper echelons of the euthanasia program and knowingly transferring children to be killed"https://t.co/4UdY3Dcbjt
Heaven forbid you use the reclaimed "Asperger's" as framed by Lorna Wing, who helped found UK's National Autistic Society. You should feel bad for not defining yourself by shifting institutions label that patients in to bins. 1981-2013? Such a faux pas! https://t.co/9GIUm27twY
I suffer from the condition formerly/informally known as Asperger's. I'd call it autism, but I'm kinky. I like when people try to gatekeep the language I use to describe myself. Oh yes, gatekeep me, that's how I like it. oOooo. Yeah. Call me a persons with autism, daddy.
If you aren't making someone mad in how you police language, you aren't gatekeeping hard enough.https://t.co/AMiLFZ11Y8
Oh yes, Harder. Gatekeep me harder.Ignore my voice and make me submit by staying silent.Dominate me and make me go quiet like when I can't speak and go mute like a dumb retard of yore.All the better so you can ignore me in you game of power.https://t.co/f9mnjPKc12
Sufficiently advanced meta-gatekeeping ala irony poisoning is indistinguishable from being a celebrity tier lolcow.https://t.co/q1TTCyNnQJ
Do you ever watch a 55 minute presentation on specuatations on military applications of brain-computer interfaces by a former CIA intelligence person trying to predict the future, and realize that you knew more than them?https://t.co/PSfGa58GN6https://t.co/k64UrO3FqE
Leon Thereminhttps://t.co/dBfmQGfrA3 https://t.co/Vnmt2aJY7O
"We used to play with the 18ghz microwave detectors where we could pick up heartbeats thru anything but solid steel and water"you wat m8https://t.co/X8abH8OSyB
Pets first."non-invasive application has been reported which stimulates the brain with ultrasound to control the animal. Some applications (used primarily for dogs) use vibrations or sound to control the movements of the animals."https://t.co/tXShck5FKuhttps://t.co/WOC70wXysm
It's exciting to see the intersection of cyborgization being policed thru FDA regulations and not thru weapons export laws.https://t.co/QeeqMFumAx
"it's illegal to administer ultrasound without a prescription or to promote the device for nonmedical use.Some state laws also say that operating an ultrasound machine without the proper credentials is "practicing medicine without a license."https://t.co/kQtO42TlOk
Things are heating up.https://t.co/X3jNTJxU8R
Did you ever wonder why those robot dogs were priced at 74k?"The price of a fully-trained protection dog ranges between $30,000 and $80,000, with the average sale price around $50,000"https://t.co/7sMD8SLQKw
Some furry somewhere is working with the military to embody a dog's brain and remotely interface with brain embedded heartbeat sensors by co-opting canine hearing.https://t.co/X45XweZnY1 https://t.co/yqHyKqVDtw
Paying attention https://t.co/9Pr94kicXr
and as I unpause the video. Moments later."You can connect a human brain to a rat and control it's motor movement, and it's tail. So you can have nonhuman animal drones."He's citing this thing from 2013 https://t.co/pRzdTBmWCM
They've made progress on that, BTWhttps://t.co/jmK07mknUI
I found out a better way to train the mice/rats by mistake, BTW.https://t.co/MjWhEfwqM8
Do you even google?"In fact, she's so good she's been put on a special team with other superforecasters whose predictions are reportedly 30 percent better than intelligence officers with access to actual classified information."https://t.co/SRtAa3YW6A
I just don't use words you do.Error bars? Chaos? Quantum Physics?"But it's random variation around a signal, a true signal, and when you add all of the random variation on each side of the true signal together, you get closer to the true signal."https://t.co/pBrodP9afB
Oh good, now he's covering some of the gene editing tech and applications in medicine & military applications. He's operating from 2018 knowledge base IIRC.So many people doubt.https://t.co/53aVxeQ3K7
@carribeiro @kevinfolta @pmarca This space has been growing under people's noses. Thinking it's science fiction when there were already real world cases of it in existence. https://t.co/Apa9VKBihbThe future was already here, just not evenly distributed. https://t.co/wfWJxJGZnd
Hey, that guy is an expert in PTSD & stress. Funny.https://t.co/AGaXgB3ex6
I wonder what his models of stress are like. If he knows about venter's work, maybe he understands a bit about microbiology.https://t.co/dCBziz3L5g
Don't mind me, just seeding some doubt in the minds of experts.https://t.co/LQsoINjNMc
Do you ever study gut bacteria's role in GABA production to study why anxiety shows up so often in gut dysbiosis associated disorders?https://t.co/HjOaAXaPkT
"Low brain [GABA] concentration in [PTSD] is consistent with most findings in panic and social anxiety disorders. Low GABA associated with poor sleep quality is consistent with the hyperarousal theory of both primary insomnia and PTSD."https://t.co/9vYlp4p2v5
Ah, I thought his name sounded familiar. https://t.co/uQlm6vx1SQ
He cites Duke university a lot.https://t.co/Pi6U8PYBUo
That thing about injecting a cell that releases PKMzeta at key points within the brain to erase memory of a maze is really fascinating.He's wrong about it tho https://t.co/phoTWMy0gzhttps://t.co/JPIhi10PJJ
It's amazing how many people cite that study on PKMzeta and never bother to question it.I mean, its not like I've been exploring how to boost hippocampal memory retrieval to fight persistent brain fog or anything. ;)They even cite that here:https://t.co/tRKnDHx0BO https://t.co/1RiGHSTuwa
These are reversible. I think the PKMzeta thing is less about forgetting, and more about creating sleeper agents. But perhaps my take is a minority report.But it's because I'm right.https://t.co/V3HbfpakLR
Can you imagine someone trying to implement PKMzeta based targeted memory loss via a viral contagion of some kind, and they accidentally inducing dementia by triggering secondary memory formation systems that impacts neuroimmune function. And then suddenly everyone goes to sleep.
Y'all got any of them gene drives?https://t.co/KH8EdPj6ID
"Gene drives could be used to benefit public health, the environment, agriculture, and animal well-being. However, real-world use may incur ecological risks, and even research involving self-propagating gene drive systems may risk public trust in science"https://t.co/Ftui5Tu22j
fuck shit fuck. He knows he's wrong. https://t.co/pNH72zSJYJ
"if you want a better human camera, an individual who can just go see and remember everything...""IL-6":(https://t.co/vKhpBeoVGh https://t.co/D6lEPu6429
BRB, going to go vomit.https://t.co/cQDkT4mLYohttps://t.co/9Gm7FpF8hO
Anxiety rising. This is what my body does to "forget" things that bother me.I'm going to shut it down because I don't want to forget anymore.https://t.co/QFq7tiUMxc
Do you ever have a paranoia that some government agency will frame you for being a conspirator, throw you in jail, threaten your entire family's lives, and then force you to work on super soldier programs as part of the war effort?I stan Léon Theremin.https://t.co/TTaeoAIpLw
Ah, found my tweet on encryption & communication problems on brain2brain interfaces.https://t.co/NQMWDzjrkY
TFW you realize that even if we invent brain-to-brain communication (and remove all need for linear idea compression formats) the mental constructs in your head won't have a strong semantic grounding as you interpret the world differently and mapping will be just as fucked. https://t.co/egrNALpHi5
Not the BEES :Dhttps://t.co/AsiD83G8ge
"code talkers is strongly associated with bilingual Navajo speakers specially recruited during World War II [...] serve in their standard communications units of the Pacific theater. [...] pioneered by the Cherokee and Choctaw peoples during World War I."https://t.co/pwrVbnRz5w
Now he's talking about implanting false memories.I've wondered once if this works on autistics differently.https://t.co/kgojTGMyBMBut my speculation is this is driven by serotonin production in the gut https://t.co/II1yYymgPf and not actually an 'autism' trait per se.
Ever adjust gut microbes to impact vagus nerve responses to increase trust factors associated with autism tied anxiety and find that that your memory starts working better?https://t.co/d11eFKx4Nq
Case-based reasoning? What's that? /sAll the better to manipulate you with, my dear.https://t.co/IjcViT9wWh https://t.co/QMXTgg7Pll
I don't trust my memory.https://t.co/4Y7W066flI
Whispering to myself about an idea-connection I didn't know I made. https://t.co/snhMfR1576
"this is the first experiment showing what imagery you can hide in bacteria;this is the latest.. it's a gif file!it was actually programmed into the dna of bacteria!The offspring from the reproduction cycle would still produce this movie. pretty cool" https://t.co/WS2HooE0Tj
DNA hard drives. World Economic Forum. 2015https://t.co/9or9UzmlbR
DNA storage of movies, TED. 2019https://t.co/aka8rOSEOf
Someone found Bad Apple!! on Library of Babelhttps://t.co/wu272WSL2gMight not be that hard to transpose this to DNA sequences.
Microsoft, hedging bets against DNA drives, is looking at storing data in crystals now?https://t.co/GlRCBW5EKEhttps://t.co/zbFoPq65kz
Staring at the void to see who blinks first.https://t.co/DeT2dUfQ5J
“calls on global policymakers, neuroscientists, manufacturers, and potential users of these technologies to begin having these conversations early and collaborate to produce answers to these difficult moral questions.”https://t.co/O2khRLxqMFhttps://t.co/MdOrO3MT4J
I am not crazy. I am insane.https://t.co/u3hfOcpBHC
I'm not crazy."this case supports the need to consider MS in patients with manic symptoms and with neurologic findings that occur later in the disease course. It also highlights the need to specifically address underlying causes of psychiatric symptoms."https://t.co/5nHt2IIQjz
I am literally exhibiting symptoms that can be classified as classic psychosis. And I have the gene test to prove it.https://t.co/YcQAZTQ7nT
I caught myself clanging earlier today.https://t.co/vbf6KG5RqR
Sometimes, I literally speak in Britain-ese.It's called "foreign accent syndrome" and is a common feature of many weird brain diseases.https://t.co/8AqUydVJVRhttps://t.co/Nsra1BhsJv https://t.co/zpsj0QF02s
Early morning clanging, late night Britain'ing.I make a joke about it here. But not all my accents can be traced to anything I know.https://t.co/o1ilhbiLwj
Some people identify this in themselves and assume its a split-personality disorder.Did you know that stress can trigger brain demyelination and shifts in gut gaba/glutamate/serotonin production?https://t.co/JnbHpacXzrMy hippopotamus is broken.https://t.co/kf8c9HfX6N
Why gaba rang my bells:"changes in synaptic function and network activity in the hippocampus of EAE mice largely rely on IL-1β-mediated suppression of GABAergic activity, at least before the degeneration of GABAergic interneurons is established. " [2014]https://t.co/HKEv0FACKi https://t.co/6bgYbjPOTV
I have the hardest time with autocorrect because I see things like hippocampus and hippopotamus in my feed and don't know if I did that naturally, or if it was just me being linguistically retarded. https://t.co/ohDWkgn7pS
It's not 'repressed memories'It's stress induced reductions in serotonin in the gut leading to poor signaling in the hippocampus causing place/grid cells to not fire correctly. Fix the stress and the memories come back. Freud's got the model backwards!https://t.co/JoRagRV4GB
Hippo Camus.When your brain makes rhymes about how absurd your life is, and also is trying to remind you about how drinking coffee might boost Acetylcholine which fixes when your language starts to hip-hop. A self-medication common in schiz literature.https://t.co/2u2WzH0HRx
Gonna mix in some omega 3 oil into my coffee because my brain is now thinking about putting oils on word salad.https://t.co/1jnE8hlPcr
Cling clang, I'm breaking my brain.Rhyming about computer inter-face-eye.Rub dub I'm thinking about washing it in a tub;A metaphor of propaganda to get you interested in BCI.https://t.co/4N68TcONPa
"Such miniaturized units could enable prolonged monitoring of chronic conditions such as epilepsy and greatly improve the end-user acceptance of BCI systems. [...] answering the questions: What is it, why is it needed, and what does it entail?"https://t.co/M6lFHgZPrz
Why is brain washing stuck in my head? Oh. Right.I literally doused my clanging brain in some high grade musical drugs."Can you say "Brainwashing"?B-b-b-brainwashingIt's a non-stop disco"🎶https://t.co/dCJ5QWCEDw
April 26 https://t.co/68RCMTus4PApril 28 https://t.co/BuRhBc0SS6May 11 https://t.co/4B7QftU7U3September 21 https://t.co/YrgeCQhZztMe, 4 years ago:https://t.co/8A6cbATPU3
Getting an autism diagnosis in a child is challenging. Lots of parents seem to be trying to get a diagnosis early because it gives a child an IEP and there is competition for private schools and colleges. People are trying to get every edge they can.
Fuel is already there to have biometric proofs logged in healthcare records from an approved healthcare app.And we're seeing a slow drip of news articles about the topic now.https://t.co/TcyZWSDURy
You must be this autistic to have your digital twin wear the red letter A.No one ever got fired for choosing IBM's decentralized identity tracking system. https://t.co/AFXQdcG0qM
With the power of Watson AI on our side, how can we be wrong?"The tool is aimed at allowing users to share their verified health status without exposing the data used to generate it."https://t.co/WaRusUIDRF
Don't like Watson?Choose your poison.https://t.co/bKzmBNl3W4Take the cure.https://t.co/wBDT6UmNFOSo many to choose!https://t.co/iuOFFlMgiwGonna get people rich.https://t.co/A6GJvIoqaC
"Don't fight it son. Confess, quickly! If you hold out too long you'll jeopardize your credit rating." [Brazil, 1985]https://t.co/A4LFyt9yL6
My credit score is impacted by having an unpaid medical bill from breaking my hand.https://t.co/jtqBI6gbH7
"Of those, 24 percent didn't realize the bill was owed and 13 percent said they never received the bill in the first place. Another 10 percent said the bill was sent to collections mistakenly, even though they had already paid it."https://t.co/GOFrgDeH3O
Please be patient. I have autism.You can see my papers if you want.Soon you'll be able to query a blockchain and get an NFT style zkrollup-esque attestation proof. https://t.co/LXNShVB4QYhttps://t.co/3p7MPDWkff
Medical debt as proof-of-stake.You don't think Self-Sovereign Identity be like it is, but it do.https://t.co/E6NKUSl3AZ
Mom, the SmartLOCK on the fridge is starving me again because the phone interpreted me dancing as having autism. It trigged the PICA protection protocol.Can you call the doctor to override it again? I'm hungry.https://t.co/GA4UkKmBNY
"When safe heart rate levels are exceeded, an alarm is triggered. The patient is alerted and seeks advice or immediate care. The smart contract can be written to alert medical staff to contact the patient or deploy an ambulance." https://t.co/IoTW5CQacV
"While not a pancreas for interoperability, blockchainprovides incremental improvement to existingworkflows by making a trustful system that canbe decentralized and fully automatic, increasingspeed and accuracy while reducing humanerror." https://t.co/FYlMbICueK
@maradydd I think they meant "panacea"? https://t.co/oUtLOkBvwt
"Technology does not have an agenda of helping healthcare, [...] It develops because of miniaturization, lowering costs of production, and so on, not because it makes people well, but rather because it can find ways of making money and reinvesting it."https://t.co/X3QL5Cyn7P
I love the future."Your health data, pharmaceutical drugs and elements of the human composition such as blood can be represented by NFTs."https://t.co/lBnpq2tS92https://t.co/DHl2KOGXDw
"Instead of paper prescriptions, e-prescriptions securely stored on the blockchain can restore trust to an outdated system with a layer of monitoring for misuse."https://t.co/wEWiZ5nt81Do you have an NFT for that bottle of antibiotics?
I love the future. https://t.co/6u2tthVhOe
"Though ASD and SZ are now distinct disorders—today’s ASD remains a childhood-onset disorder whereas frank SZ predominantly emerges during young adulthood—the two disorders still share common genetic risk factors and symptom presentations" https://t.co/R83IUT60D7 https://t.co/zHL0LaFFyO
"The large proportion of autistics recently reported to have exceptional skills [...] would be judged as less “severe” if they lost those skills. Exceptional skills are considered to increase “severity” (that is, atypicality) in autism, not decrease it."https://t.co/u0n1JhqaDi https://t.co/pG2oGMXZ0S
"[Multiple Sclerosis] is most often diagnosed in young adults"https://t.co/2UYIcXhaO0
"similarities and differences in genetic, immunological, seasonal, geographical, and gender-related risk factors and limited similarities in ethnic factors between the two [...] subgroups of these two diseases may belong to the same class of disorders." https://t.co/xpS4O29kGE
"Case Report: Overlapping Multiple Sclerosis With Anti-N-Methyl-D-Aspartate Receptor Encephalitis: A Case Report and Review of Literature" https://t.co/AXWnvrF3Ke
"Elevated serum anti-NMDA receptor antibody levels in first-episode patients with schizophrenia"https://t.co/JM7gCFDzqC